I can't tell you what a year it's been. What a blessing it is to live like this. N
Inspiring, transforming and encouraging lives is my Dream. A Diary of what it's like to live with Pulmonary Hypertension...a life-threatening disease with no cure...except from God. For what is impossible to us, is possible with Him!
I can't tell you what a year it's been. What a blessing it is to live like this. N
Recently I read a book that challenged me to think about what I'd do if I only had one month to live. Honestly, the book was very insightful and for many probably very thought-provoking. At the end of my read I couldn't help but feel like I really didn't need to read a book to find out what I need to do with my life if I found out I was going to die soon. Everything in the book, I'm already doing. Since being diagnosed with Pulmonary Hypertension, I've completely changed my way of living. I don't want to waste any more time. I want to live like I'm dying. Plain and simple. And like the book mentions, I'm living the dash. The dash that's between the two years of my life...1978 - ?.
Father, may my flesh and bones become a living sacrifice for you.
........Mind you, my list is a working progress and items will just randomly appear as I think of more stuff to do with my life. :)


When the prayer was done, there was not a dry eye in the room. Everyone was crying. But the tears were not of sadness but something much more. There was a blanket of peace that had been placed over all of us. The circle that was physically made by our held hands was so powerful that it drew God's angels down to us. I saw N, filled with hope and peace and inspiration. She looked at me and wouldn't let go of my hands. I told her that I loved her very much and that her life was so admirable to me. I pressed my hand over her chest. And though her body seems fragile and weak, her heart's thump was oh, so strong underneath my palm. I smiled at her and looked into her eyes. She thanked me in little words but her eyes transmitted much more. I love her. Will cherish her forever. And as we walked outside, the air was refreshing and the breeze lifted our spirits and reconfirmed that we had done the right thing. That prayer was not of my own words but of the Holy Spirit. Tears were cried by some that would never cry, words were spoken by someone that could never find the right things to say. Hearts were broken only to be mended and minds were opened only to be transported into a higher place of understanding. The seed has been planted and the doors have been opened.
en feeling very faint lately...mind you she just had a C-Section a couple of weeks ago, BUT this is K, the ONE that NEVER stops doing stuff, she's such a busy bee, go here, go there, do this, do that, clean here, tomorrow clean there. Anyways, it was so funny because she explained to me that she had come to the point of practically preparing her hubby, Jo, for the 'worst'. She said she thought she might be having an embolism (she's in the medical field so this is why people in the medical field over diagnose themselves ALL THE TIME), we just know too much. She gave Jo a list of the meds she had recently taken and told him to wake her if she didn't wake up from a nap after an hour...he let her sleep all night.
I remember the episodes, they happen in slow motion. I feel a sharp pain in my chest and automatically I pause. I stop whatever I might be doing, listen and wait. I don't know, what I'm waiting for but I wait to see if it's going to get stronger or something. The faces of my kids run through my mind and I view them like a slideshow. Their laughter, their cries. I don't know if that'll be the last time I experience their hugs and warmth. I see my husband and picture him here on earth without me. I want him to be happy and I suddenly find myself asking God to take care of them.
This weekend I went to a Woman's Leadership Retreat from church and heard many speakers. Every single one of them touched me in a different way. I was able to relate to each and every one of them, as they spoke about life, moms, God, leadership, drugs, abortion, marriage, teen pregnancy, just to name a few. Surrounded by ladies from all walks of life, we were all there for the same purpose. To grow, spiritually. It was not only an eye-opening reflection on myself, but also an invitation to want more for other women like me.
In preparation to this weekend retreat, we read a book called Strengths Finder by Tom Rath. I learned five of my top strengths and the top one was connectedness. It was right on. The author says, "...you can give others comfort that there is a purpose beyond our humdrum lives." (pg. 73) This is absolutely true, hence my blog. I have always felt a need to tell others that there's a purpose for whatever we might be going through, there's a light at the end of the tunnel. I recognize when others are feeling blue because I went through it. I see it in their eyes. And last but certainly not least was Arranger: "In your mind there is nothing special about what you are doing. You are simply trying to figure out the best way to get things done...effective flexibility...From the mundane to the complex, you are always looking for the perfect configuration...You jump into the confusion, devising new options, hunting for new paths of least resistance, and figuring out new partnerships - because, after all, there might just be a better way." Yes, there is ALWAYS a better way! I'm always trying to find out how to do things to prevent hassles later. I learn from my mistakes and figure out a better way to avoid them later. In turn, just like the above strategic way, I analyze and think about paths, routes, and dead ends.
I believe our strengths, our gifts are given to us for a reason. We've been supplied a unique personality, each one individual on its own, and each person has a special importance. We might not all think the same or have the same interests, but there is a reason. We are all bonded by the fact that we can give love in so many, many different ways.
"As each one has received a special gift, employ it in serving one another as good stewards of the manifold grace of God. Whoever serves is to do so as one who is serving by the strength which God supplies; so that in all things God may be glorified through Jesus Christ, to whom belongs the glory and dominion forever and ever." 1 Peter 4:10-11
Before that evening of prayer John 9 had been brought to my attention by my father-in-law. The apostle John talks about the healing of a blind man. The first question that arose in my head when I was diagnosed with my disease was, “Why me? What have I done to deserve this?”
“…He [Jesus] spat on the ground, and made clay of the spittle, and applied the clay to his eyes, and said to him, ‘Go, wash in the pool of Siloam’. So he went away and washed, and came back seeing.” John 9:6-7
his undeniable, non-judgmental love. At that point it hit me. I realized that Jesus has already done that to me and more! I have to say, that my disease really hasn’t been that bad. I am still doing all my normal stuff. I can still walk and talk and work and laugh and go here and do that. God has provided me a job with medical benefits that pay for the expensive medication. God has provided me a wonderful husband and the support of many friends and family that truly care about me. I am not depressed and have not become handicapped. Yes, I deal with little things here and there, but that’s all they are…little things. Nothing is going to get me down. If anything, I feel more empowered and happy and have gotten the opportunity to really enjoy life. I see my kids and husband with a new love. I wear these great lenses of hope that constantly let me peak into a world that is full of optimism. I am more today than I have ever been. I love it.
In order for there to be a miracle of healing there's got to be a disease first. In order for it to become clean, it's got to be dirty first.
Sometimes I think God stays quiet with me so that I can strictly open my ears and just reflect. It’s been a few weeks since I blogged and it’s because I really didn’t have anything be put into my heart to even write about. The Lord’s stillness has reminded me of the times I rested my head on my mother’s bosom. I didn’t need to hear any speaking; I just listened to the thumping of her heart beat next to my face and to the rhythm of her breathing, this which pleased and comforted me. Sometimes my mom sang a lullaby and other times she just held me in her arms. Words were not spoken but the love she emitted was felt very graciously by my being.
I know that God is that same way with me. I have felt Him these past weeks…just enfolding me like my mother use to hold me. No words spoken, no singing…just feeling His love next to me. Feeling His embrace is enough to fill me up with confidence. Nobody can harm me, for I’m protected by my Father. Nothing can tackle me down, for I’m held up by the ever-lasting King.
When I look in the mirror and see the bruises that I’ve developed because of the medication I’m on, I don’t get down or envelop myself in sadness…I smile at the reflection staring back at me. I smile, not at myself or at the outfit I might be wearing. I smile at the Lord’s creation. He made me to His image. He made me beautiful in spirit and I know He is pleased with me. I smile because it brings me such joy to make Him happy. I smile at His love and at His never-ending mercy.
The other day, of all days to forget my handi-cap placard for my car, I drove my husband’s rental to work. In order to avoid a long grueling walk, because of my Pulmonary Hypertension, I parked in an area of the hospital where employees are not supposed to park. To my surprise, as I got out of my car and proceeded to walk to the entrance, I was greeted by our Security Guard on his SegWay. Arrrr!!! I felt my blood start boiling as he looked at me like a father looks at his child when he finds her doing something she’s not supposed to. I felt like a little girl, about to plead her case in front of the big mean SegWay Police Man. After realizing that I didn’t even have the DMV paper for the placard on me, I told the security guard my reasons for not parking at the far, far neverland employee parking lot. He pointed toward a spot where he would allow me to park for the day. It was about three lanes farther than where I had comfortably and oh, so graciously, parked my little rental. I then got back into the rental and drove to the allotted spot. I couldn’t believe that as I was sitting in the drivers’ seat, I almost started crying! My throat developed a big knot and I felt self-pity nudge on my shoulder again. It was there to remind me that I am sick and that I have a handi-cap.
ot a mile away.” That’s it, that’s all it took for there to blossom a smile on my face. I looked in the rear-view mirror and took a look at my eyes, in them a love and secure guarded peace looked back at me. I rebuked self-pity and closed the door on depression and almost saw the angelic beings stand guard for future attacks. My walk was not tough and I made it to the Labor and Delivery floor right on time to clock in.
any strong nurses, doctors, midwives, and anesthesia providers that are all willing to give so much of themselves for the health of others. I’ve seen how nurses are able to look into the eyes of perfect strangers and tend to them as if the patient is their own daughter. The love and passion that nurses give is absolutely outstanding and often leaves me awe struck. I’ve worked alongside these brilliant nurses for many years and found myself believing that I could provide the same or, in some cases, exceed the care given.
The other night I read one of my friend’s blog posts to Hector out loud. A topic she mentioned in it was about respecting your husband. I couldn’t believe what a slap in the face it turned out to be. As I read it to Hector and then took a quick glance at his face I suddenly realized that, I, little ‘ole me, was under-appreciating my own husband. Mind you, I had read this exact post before without any revelation whatsoever but what made a difference this time was seeing Hector’s face as I read it. His face quiet and sympathetic. His eyes a gaze at the floor. His lips closed in reserve. His brows lifted in thought. I understood that as I continued reading he was finding himself relating to my friend’s husband as well. Suddenly the light bulb went on over my head and I haven’t stopped thinking about it since.
He’s done so much for me over the past 15 years that we’ve been a couple. It’s been so long that I just tend to feel that he should know how much I love him and appreciate him. But does he really? We’ve been married for almost nine years and living together has really tried our hearts and patience. At first the days passed, then the months, now the years have passed so quickly. And maybe if I stop to listen to him I can actually hear a faint cry for help. In my eyes, it’s obvious how much I love him but I’ve realized that in his eyes things might seem a little different.
"Husbands, love your wives, just as Christ also loved the church and gave Himself up for her, so that He might sanctify her, having cleansed her by the washing of water with the word...So husbands ought to love their own wives as their own bodies. He who loves his own wife loves himself..." Ephesians 5:25-28
He does so much for me. He knows that with my disease I quickly lose my breath by hauling the heavy vacuum back and forth, so he vacuums for me. He knows that doing the laundry is exhausting for me, so he does the laundry. He knows that going up the stairs while carrying our little 21 pound baby takes my breath away, so he does that for me, sometimes several times in one day. He carries the backpack and Lisamarie to and from our car at the parking lots wherever we might go. He picks up everything off the floor even if it’s right by my feet, just so I don’t bend over. After work he’ll stop by the grocery store and pick up whatever we might need, cook dinner, then finish picking up all the toys in the living room and shower sometimes at 11 o’ clock at night. I can’t believe how much he does for me. How much he does for us, his family. Yeah, sometimes he complains and other times he says nothing. His days are so busy and filled with problems and responsibilities and still he admits that all he wants is to be at home with us, pesky brats.
He’s my husband. The one that showed me what True love was all about. The one that stood out from all the rest in High School. The one that spoke words of wisdom, when everyone else just wanted to go drinking and clubbing. The one that valued me even more so than my first hero, my dad. Hector, has always been the voice of inspiration and good judgment. The one that constantly makes me understand that God sees me as a precious treasure. He is my love and I his. Oh Lord, I give him to You, take care of him and bless him mightily.
"Wives, be subject to your husbands, as is fitting in the LORD. Husbands, love your wives and do not be embittered against them." Colossians 3:18-19
"However, in the LORD, neither is woman independent of man, nor is man independent of woman. For as the woman originates from the man, so also the man has his birth through the woman; and all things originate from God." 1 Corinthians 11:11-12

But then I thought about the girl. Who is she? Where does she come from? Does she even know she’s worth so much more? Does she have children waiting for her at home? Maybe she doesn’t want to settle for a regular occupation because the money’s not as good, or maybe she doesn’t even take home that much money because her pimp seizes all her earnings. Does she comprise any diseases? Does she even have a place to stay? What kind of people is she constantly being surrounded by?